Q. I HAVE SIDE EFFECTS FROM THE TOXIN. WHERE DO I START?

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A. We have a wide range of information in our education centers and healing manual which will help you to navigate through what is happening to you and how to start your healing journey.

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• See Education Center for Sufferers

• Visit Healing IBP Recovery Manual Section #1

• Choose your healing road, (most members start on the green road.)

• Newbies 'quick start' can be found in GU 5 in the healing manual.

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Q. I HAVE READ THE UNITS AND I AM STILL CONFUSED ABOUT WHAT TO TAKE.

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A. Always start with small amounts and work up. The answers to how to take supplements are in the manual GU 5-13 in the healing manual.

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• Consider copper & celery juice, Vit. C and add a binder like slippery elm or charcoal.

• Focus on getting electrolytes without zinc, information is in the guide.

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Then focus on -

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• Treating your adrenals. 

• Choosing a supportive diet based on your symptoms - There are 3 different options.

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Q. WHERE DO FIND THE IBP RECOVERY MANUAL?

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A. The recovery manual is linked under the resources tab of this website. Please note: You must be a current member of the Botox Dysport Side Effects support group on FB to gain access via our password. 

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Q. HOW DO I KNOW MY SIDE EFFECTS ARE FROM BOTULINUM TOXIN?

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A. Please read our side effects list under the resources tab of this website, there you will find the side effects listed in the warning labels of the products and the ones most frequently reported by our members. Then you should read through member’s posts in our forum to get an idea what side effects most people are experiencing.

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Q. MY DOCTOR DOES NOT BELIEVE MY SIDE EFFECTS ARE FROM BOTULINUM TOXIN/ WHAT SHOULD I DO?

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A. There are articles and medical studies in our files section. Dr. Hristova’s study is a good one to start with. Download and hand them to your doctor. Also, ask if they have read the product warning literature (Black Box Warning.) Please be aware some doctors do not wish to acknowledge your illness, get a second opinion. There are studies to take to your doctor in Guide 2.

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Q. CAN I GET ILL FROM A SMALL AMOUNT OF COSMETIC BOTOX/DYSPORT /XEOMIN ETC?

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A. Yes, we have members who became ill from as little as 4 Units.

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Q. I HAVE BEEN TOLD A CERTAIN BRAND IS SAFER/MORE PURE THAN THE OTHERS. IS THIS TRUE?

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A. This is a marketing ploy. All botulinum toxin products contain the same toxin which destroys your muscles and nerves every time it is injected. Botox, Dysport, Xeomin, Jeuveau and Daxxify all contain botulinum toxin type A, the exact neurotoxin responsible for causing human botulism.

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Q. WHAT DOES “OFF LABEL” MEAN?

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A. Off label means they have treated you with botulinum toxin in areas which the FDA or equivalent in your country has not approved. The manufacturers offer no guidance for a safe dosage and placement of the product so it’s up to the injector to get it right (they often don’t.)

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Q. HOW DO I CONTACT THE ADMIN TEAM FOR INDIVIDUAL SUPPORT?

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A. Because our group is now so large, our small team does not have the time to give individual support to members anymore. Please post or comment in an existing forum post with your questions and one of the team will try and provide an answer. You are welcome to “tag” a specific team member. Please remember we are a small team of volunteers and we also have busy lives. 

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PLEASE DO NOT PRIVATE MESSAGE ADMINS OR MODERATORS, WE WILL NOT RESPOND.

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Q. I KEEP HEARING THE TERM IBP, WHAT DOES IT MEAN?

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A. Iatrogenic Botulism Poisoning. This is when either the toxin has spread causing side effects or its use caused the body to have a severe immune response. It is caused by manmade botulinum toxin used for therapeutic and cosmetic treatments. Learn more about this in GUIDE 1.

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Q. WHAT IS MCAS/HISTAMINE INTOLERANCE?

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A. Mast Cell Activation Syndrome/Histamine Intolerance is an immune response to the toxin where the body develops reactions which cause a host of different side effects that are often triggered by foods, supplements, medications, and environmental factors. You can have an allergic reaction to things that you are not actually allergic to as the body is over reacting to histamine or not managing it properly. This often happens after botulinum toxin treatments. Read more in GU 18-20 in the recovery manual.

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Q. HOW DO I KNOW IF I HAVE SYSTEMIC TOXIN SPREAD?

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A. Many people will have side effects, sometimes severe, away from the area which was treated which can include: muscle weakness/paralysis, tingling, twitching, bladder and bowel paralysis, changes in brain function, dysphagia (swallowing difficulties, neck problems and more..

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Q. I HAVE SEVERE ANXIETY AND PANIC ATTACKS SINCE AFTER MY BOTULINUM TOXIN TREATMENT. WHAT IS HAPPENING AND WILL THIS EVER GO AWAY?

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A. This is the most common side effect reported in the group. This can occur from nervous system dysregulation and can also be a symptom of a mast cell/ histamine response. See GU 35 in the recovery manual. Many people find that this will lessen or go away within a 3-to-6-month period. Please be careful with medications as they can lead to worsening symptoms and dependency issues. Please discuss all options carefully with your doctor. In some cases, it will be necessary to take medications in the short term to keep you safe. Read more about managing anxiety with medications in the manual. Please note: sometimes anxiety is caused by excess histamine, please see GU 18-20 in the recovery manual for more information.

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Q. I HAVE A DROOPY EYE/MOUTH, DENTS, DISFIGUREMENTS AND OTHER VISIBLE NEGATIVE AESTHETIC CHANGES, WILL THESE HEAL AND WHAT CAN I DO TO HELP WITH THESE ISSUES?

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A. Please read the post on symptom management for ptosis and muscle atrophy and other side effects recovery manual.  Further symptom management is also in the manual. Please see the table of contents. Everyone has their own healing journey so it’s hard to give any time frames for healing.

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Q. I HAVE READ THAT YOU CAN FIX A DROOPY EYE WITH AN ELECTRIC TOOTHBRUSH/MASSAGE OR HAVE TOP UP TREATMENTS TO CORRECT THIS MISTAKE, WHAT SHOULD I DO?

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A. This is bad misinformation and may cause toxin spread making you ill. It is best to keep well away from the treated area. Additionally, massage and *any disturbance of the area may also cause toxin spread making you ill. Please be advised that top ups are the most common time people experience toxin spread. Tops ups often over saturate the muscle with the toxin, or go over the approved dosage limit for the area. Please avoid this as it may be extremely risky!

 

PLEASE READ BOTOX DON'TS FOUND IN THE FEATURED SECTION OF OUR FORUM.

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Q. HOW CAN I DETOX FROM BOTOX?

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A. You cannot detox from Botox and many detox substances used for detoxing heavy metals and other toxins can cause toxin spread making you more ill. We have a number of posts that discuss this topic in our FB forum. Please use the search bar to locate them.

 

*PLEASE ALSO READ BOTOX DON'TS FOUND IN THE FEATURED SECTION OF OUR FORUM.

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Q. WHICH COSMETIC ALTERNATIVES DO YOU RECOMMEND?

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A. We do not have the time to research the safety of alternatives, so we no longer allow posts on this topic into the group. You can search for information in old posts using the search bar. We do not allow posts discussing Botox alternatives for this reason.

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Q. I HAVE SIDE EFFECTS FROM FILLERS/FILLER REMOVERS (HYALURONIDASE) CAN YOU HELP ME?

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A. Please visit the fillers group. Botched Fillers and Hyaluronidase Damage Group. They will be able to help. We focus on botulinum toxin in this group and do not have the time or manpower to help those damaged by fillers or their removers.

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Q. MY ENGLISH IS LIMITED. DO YOU HAVE ANY INFORMATION AVAILABLE IN OTHER LANGUAGES?

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A. We are currently working on translating information into other languages. We will notify forum group members as soon as this is completed. In the meantime, we have members from most countries in the world and forum information should be automatically translated in FB. Feel free to put up a post in your own language requesting help from other members who speak your language who may be able to help with translating and offer you support.

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Q. WHY WAS MY POST NOT APPROVED IN THE FORUM ?

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See below:

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1. The answer is contained within our education centers or recovery manual. Please read prior to posting.

2. The subject is not a discussion we allow in the group as is not appropriate or breaks FB rules.

3. No celebrity posts or photos of children allowed going forward.

4. Discussion of something in our “Don'ts” list.

5. Language that may trigger others in a negative way i.e. suicidal thoughts.

6. Too many similar posts recently, please put the subject into the search bar instead.

7. The post discusses cosmetic alternatives or treatments which may be unsafe for our members.